Category Archives: Family

July and February 

Dammit Nashville. You done gone got me all in my feelings tonight. It’s funny.  I realize that when I reach the point of the “ugly cry” that I’m more aware of the different emotions I’ll feel throughout each of my days. The popular ones lately are anxiousness, anger, irritation, and unconditional love, which mostly emerges on the weekends.

Nashville has that ability to stir up thoughts about meeting a character or a person for the very first time, watching how they live their lives with you in it and then BOOM! It shatters your heart into a million goddamn pieces by tossing grief into the mix. 

Grief. Hello darkness, my old friend. I think what astonishes me the most about this emotion is the capability it has to reach different levels. Hell, it’s deadly in itself. 

I have to say that my strongest relationship with grief comes from the bond that was broken between my Grandpa and I on February 28, 2013. That firecracker of a man was born on July 4th and I’m the female version of him, down to the abrasive words that come out of my mouth.

I have this liberating ability to not give one single damn about someone or anything. But if I love you, I have the powerful ability to do my best to protect you, respect you, and make you laugh while doing so.

I loved and respected that man on a level as high as my father. I took his words to heart and I’d be damned if I disappointed him. I would even brag as a child about wanting to marry him when I got older. Now I’m older, and I dwell on him not being around to watch me get married.

Ending on a spiritual note, I believe that there is an afterlife. I believe that he is in my car every time I get in it, with damn good reason.

I just wish that heaven was a phone call away, because he’d want to FaceTime and I’d give anything to see his face. 

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The Year of Declutter

2016 brought many changes good and bad, but that’s all we’re going to say about it. 

In other news, 2017 is my year of decluttering and focus. I may be doing this ass backwards, but sometimes that’s just how I like to do things. Recently, I scheduled an appointment to look at a possible wedding venue next month. Then, a week after the fact, I’m attending a bridal expo. I know what you want to ask me. No, I don’t have a date set and no, I did not make a guest list. So don’t ask me if you are attending. 

For the record, because I’m sure I’ll end up sounding like a broken one if I don’t say this now…I’m not inviting the whole goddamn world and their mothers to my wedding. As I have said once before, not everyone deserves a seat at the table in your life and as of right now, mine is full. 

2017 is the year of declutter. The year of acceptance and the time to take a breath of much needed fresh air. (I started by dusting and decluttering my room today. Hooray adulting!) 

My body is so familiar to the feeling of stress that nearly every part of me shut itself down in some way for the past two months. I’m done trying to keep up with others when I just don’t have it in me. I’m doing this for my mental health as well as my physical. 

2017 is the time to focus on me…and the future hubs. Meanwhile, I got my bulletproof vest on for the bullshit that comes my way. 

New Beginnings

I really didn’t want to write this, especially during my lunch break, but since it’s official and I’m still reeling, here it goes. 

Early last month, after being on a 15-year waiting list for Misericordia – a home for disabled adults and children – my brothers were called upon 5 years early to live there. This meant we were blindsided by overwhelming emotions and one hell of a tough decision. 

You can never prepare for a phone call like that. When my mother sent me a text message to tell me about it, all I could do was cry. We (mom, dad, my fiancé and I) knew what our decision had to be, but we aren’t the slightest bit ready to let them go. 

I always said I wanted to move out before they did, because I couldn’t and still can’t imagine coming home from work everyday and not seeing them where they belong. Now I think, what would be the difference? And I can’t really find an answer for that. 

I’ve always been the voice for my brothers and for once, I am speechless. Sean can adapt anywhere, but what I fear the most is that Jason won’t be happy. 

But all we can do is try. We can bring them home when we want and we can visit them as much as we want, the only difference is that nights in their own beds will be slim. 

I understand we have to look at it as if the boys are going off to college and living in dorms for the rest of their lives. But that doesn’t make it easier. I am grateful for Misericordia, because it will allow my brothers to thrive. They promise that once the boys feel comfortable, they’ll love it so much they won’t want to come home. Which is understandable, because they have concerts, pet therapy, swimming, and a bunch of other fun activities for them to participate in. 

Jason and Sean will be under the same roof, but not in the same room. They will be separated, so they can blossom as individuals and not be dubbed as the brothers in wheelchairs. 

There’s so much more I could say, but for now, this is all I can process. 

I just want to spend as much time with my brothers as possible. 

A Grilled Cheese Sandwich for the Soul

It’s not chicken soup, but you catch my drift.

I’ve been experiencing some life changes lately and I thought I’d do some reflecting. Nothing drastic, just pondering old relationships and fresh ones while trying to grab a brand new nutritional lifestyle change by the horns. 

Yea, that’s right. I’m buying zoodles, (zucchini noodles), dairy-free milk, and reducing my flour intake…god help me. 

I’ll just cut the shit and admit to you all, that for years, I’ve been lying to myself about having not just a passion for food, but an addiction toward it. This addiction also involves (only) binge eating. 

I will tell you that I am a foodie. This is because I am fascinated by what other cultures eat and the ingredients that fuse so well together when paired. But behind my passion for discovering new dining spots, I struggle with a balance. I don’t have a healthy relationship with food. 

I don’t need to dig down the rabbit hole and bore you with details, but I will say that it is so hard to break bad habits. It is so hard to let go of something that has comforted you for all of your life. It is hard to say goodbye to the routine.

Just writing this makes me realize why I binge. Because it’s so easy to reach for the one thing that has always made you happy and you are certain it will never let you down. (Except when the jeans don’t fit).

Since February of 2013, I have gained 35 lbs over the course of three years. Why? Because I suffered a loss from 3 of my closest grandparents and great grandmother that I seeked comfort for. But I need to realize that I am ok.

I am ok to lead a life without them, knowing that they will stay with me wherever I go. I am ok to thrive, in my career and in my personal life.

I am ok to say no, if it means taking time for myself. I am ok to live a healthier lifestyle that I deserve. 

And I am ok to let go of all of this weight.

Why I Cherish Every Moment

I’m laying in bed right now, trying to fall asleep. So naturally, I start having a full blown conversation with my conscience. 

At this very moment. I lay here in my warm cozy bed and appreciate everything that I have and don’t have. The reason why I feel this way is because life is too goddamn short to worry about petty bullshit. I have a pulse right now dammit and I will do what it takes to make it thrive. 

Over the years, I’ve lost people I’ve had close relationships with, long relationships, that were abruptly ended by death. I miss these people every day and would give anything to give them an update on my wellbeing. There is no worse feeling than not knowing when your last goodbye to someone will be. I’m sickened by the thought. You can go from being on cloud 9 and thinking that you’re the happiest you’ve ever been then boom, your world shatters into shards and you have to put the pieces back together. 

What I’m saying here is, whoever you’re close with, hug them tight and count your blessings. Make that person laugh so hard that they cry and admire the expressions on their face when they do. 

Most importantly, appreciate what you have, because in the words of The Eagles, “We may lose and we may win, but we will never be here again.” 

2016 Is Off to a Great Start

This year has already brought me so much joy. On December 31st, I received a personal message on Facebook that confirmed a number of 2 families who contacted me in 2015 with sons who have been diagnosed with Bcap31.

After being told by their neurologist that Jason and Sean were the only diagnosed case in the US as of December 31st, 2015, we recently learned that there’s actually another case that has developed here.

I haven’t been aware of any support/awareness groups for this genetic disorder which is the reason why I decided to start my own and share my family’s story. I also would like to encourage these families who’ve reached out to share anything about themselves and I want to let them know that they always have a friend in me.

I’m very excited to see how things evolve this year and I’m even more thrilled to build new relationships.

If you or anyone you know has a relative that was recently diagnosed with this genetic disorder, please comment on here, or message/follow my Facebook Page.

 

Bcap31 Awareness Page

Tick Tock

Ever wake up and think, “Where the f*ck has the time gone? Yea, me too.

I’ve been 26 for one week now and lately I’ve just been thinking about time. How much of it has been wasted, how much we spend doing daily tasks. 

Time is a bittersweet bitch. I could go on and on about all of the negative things I’ve spent my time on over the years, but where will that get me? 

All I know is that right now I’m thankful for spending my time with those whom I’ve lost and those who I currently cherish every minute with. 

  

A Night On The Town

My mom has been obsessed with Hootie and the Blowfish since the 90s, so when I heard Darius Rucker was coming to Chicago I wanted her to see him.

I was in charge of getting tickets and it turns out that when we got there we were sitting closer to the stage than I thought.

We sat 9 rows back and enjoyed the concert from behind the hockey boards. He put on an amazing show and I was happy to enjoy a night out with my parents, but more importantly I’m glad they enjoyed a night out.  

 

He Liked It So He Put a Ring on It!

This week has been a whirlwind of overwhelming emotions. It all started when my boyfriend whom I have been dating for 10 years (high school sweethearts) proposed to me in Door County, WI. I was very surprised, excited and I couldn’t be happier. My ring has a story behind it, but I’ll save it for next time. The whole thing still doesn’t feel real. However…I’m experiencing the death of my grandparents all over again in full force because I’m upset that they won’t be around to see how my future unfolds. 

I’ll skip ahead, away from the idea of them being there in spirit, but it’s just unfair and not the same. I’m angry and bitter about it and it’s starting to show. 

Today I visited the cemetery because I needed reassurance that they WILL be with me during this process and I strongly had a need to tell them while looking at their name. Even though I know the answer.
The best news to end my trip to emotional hell is that Julio and I get to celebrate our engagement with the family during my Father’s Oktoberfest party. Yay!