Because of my brothers disabilities our dad never allowed us to have a dog or a cat. The only animal I was ever allowed to own was a hamster. I had two over a period of time and my bond with each one of them only lasted two years since they had such a short life span.
I’ve been dating my fiancé for a decade and I am fortunate enough to not only fall in love with him. I fell in love with this precious, gentle, little lioness. She’s a 14-year-old Calico cat that I call my Fur Child. Her name is Baby, and she’s my baby. Words can’t explain how much I adore this creature and how much I miss her when she’s not around. I could only hope and pray that she lives to her prime, because I’ve never been as attached to an animal as I am attached to her.
And to think, that’s only me. Julio has owned her since she was a palm-sized kitten.
BUT enough with the emotions. Here’s my Baby.
I was wondering if after all these years…just kidding, I wasn’t.
So what’s my excuse this time around for not writing a post in damn near forever? It’s simple. I write every day. 40hrs a week I write for a web design company. Our clients are podiatrists, chiropractors, optometrists, and dentists. I’m not complaining, but dear lord am I learning a little too much about health conditions and the human body. It kinda puts a damper on my passion for creative writing. Especially when the weekends roll around.
On the other hand, I feel blessed every morning while driving to work. My coworkers make the 8 hours tolerable and because of them it’s much easier to wake up in the morning. I actually look forward to sitting in my cube some days.
When I’m not working, I’m trying to live in the moment. I’ve lost a few dear family members/friends lately and find myself thinking that when I look up from my phone one day the people around me won’t be here anymore. It’s a sad thought, so I try to cherish every good and bad moment that I experience.
Things are pretty steady at the moment and I’m thankful for that.
This year has already brought me so much joy. On December 31st, I received a personal message on Facebook that confirmed a number of 2 families who contacted me in 2015 with sons who have been diagnosed with Bcap31.
After being told by their neurologist that Jason and Sean were the only diagnosed case in the US as of December 31st, 2015, we recently learned that there’s actually another case that has developed here.
I haven’t been aware of any support/awareness groups for this genetic disorder which is the reason why I decided to start my own and share my family’s story. I also would like to encourage these families who’ve reached out to share anything about themselves and I want to let them know that they always have a friend in me.
I’m very excited to see how things evolve this year and I’m even more thrilled to build new relationships.
If you or anyone you know has a relative that was recently diagnosed with this genetic disorder, please comment on here, or message/follow my Facebook Page.
Bcap31 Awareness Page
A few months ago I ate the best damn fried chicken in Chicago and to all of my fellow local foodies out there, if you haven’t been to The Roost, you need to go…like now.
But first, read my article I wrote about it.
Ever wake up and think, “Where the f*ck has the time gone? Yea, me too.
I’ve been 26 for one week now and lately I’ve just been thinking about time. How much of it has been wasted, how much we spend doing daily tasks.
Time is a bittersweet bitch. I could go on and on about all of the negative things I’ve spent my time on over the years, but where will that get me?
All I know is that right now I’m thankful for spending my time with those whom I’ve lost and those who I currently cherish every minute with.
My mom has been obsessed with Hootie and the Blowfish since the 90s, so when I heard Darius Rucker was coming to Chicago I wanted her to see him.
I was in charge of getting tickets and it turns out that when we got there we were sitting closer to the stage than I thought.
We sat 9 rows back and enjoyed the concert from behind the hockey boards. He put on an amazing show and I was happy to enjoy a night out with my parents, but more importantly I’m glad they enjoyed a night out.
It recently came to my attention that Bcap31 has been diagnosed to a beautiful 4-year-old boy in Toronto. This is only the beginning, but the time is now to bring awareness to the genetic disorder.
This is my story.
This week has been a whirlwind of overwhelming emotions. It all started when my boyfriend whom I have been dating for 10 years (high school sweethearts) proposed to me in Door County, WI. I was very surprised, excited and I couldn’t be happier. My ring has a story behind it, but I’ll save it for next time. The whole thing still doesn’t feel real. However…I’m experiencing the death of my grandparents all over again in full force because I’m upset that they won’t be around to see how my future unfolds.
I’ll skip ahead, away from the idea of them being there in spirit, but it’s just unfair and not the same. I’m angry and bitter about it and it’s starting to show.
Today I visited the cemetery because I needed reassurance that they WILL be with me during this process and I strongly had a need to tell them while looking at their name. Even though I know the answer.
The best news to end my trip to emotional hell is that Julio and I get to celebrate our engagement with the family during my Father’s Oktoberfest party. Yay!
I’m always taking Jason for rides per request, so on Saturday Sean and I went for a cruise around the neighborhood. Just because.
Sean has one week left of summer vacation and with the rough summer he’s had…he needed it.
What do you folks use it for? I read that it whitens teeth and when I tried it, they didn’t look whiter, but my mouth felt noticeably cleaner with a delightful aftertaste. When I looked up ways to cook with coconut oil I just found dessert recipes.
I found this one on Instagram recently and I will definitely need to snap a picture of the finished product once I find time to make them.